Mumbai Woman Praises IndiGo For Ensuring Smooth Travel With Wheelchair-Bound Daughter
In a LinkedIn post, Monisha shared the challenges of travelling with her 14-year-old daughter, Keya, who has Spinal Muscular ...
TheHealthSite7d
Raising Awareness On Spinal Muscular Atrophy: The Silent Battle Every Indian Should Know
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People with spinal muscular atrophy demand urgent action from the Centre to reduce medicine costs
Health activists demand government action to reduce the cost of SMA medicines, citing constitutional obligations and ...
Pharm Exec1d
Biogen Seeks FDA Approval for a Higher Dosing Regimen of Spinraza for Spinal Muscular Atrophy
Application is supported by results from the DEVOTE study, which suggested that two doses of Spinraza (nusinerse) 50 mg taken ...
Mumbai woman expresses gratitude to IndiGo for hassle-free journey with her wheelchair-bound daughter
A Mumbai woman praised IndiGo Airlines for ensuring a smooth travel experience for her wheelchair-bound daughter.
The Week1d
Spinal muscular atrophy: Patients, activists seek health ministry’s intervention to bring down medicine cost
The health activists argue that the government is empowered with effective law and policy tools and therefore should ...
Hannah and Shane Burcaw Say IVF Journey Has Been ‘Heavy’ to Share as They Open Up About Interabled Relationship (Exclusive)
Known online as Squirmy and Grubs, YouTubers Hannah and Shane Burcaw have over 1.8 million subscribers. The married ...
BioSpace2d
Biogen Trims Research Workforce, Higher-Dose SMA Drug Accepted for Regulatory Review
In a good-news-bad-news week for Biogen, the company will cut an undisclosed number of employees, just as a higher dose of ...
Managed Healthcare Executive2d
FDA and EMA Accepts Applications for New Nusinersen Regimen
An investigational higher dose of spinal muscular atrophy drug nusinersen gains attention as the FDA and European Medicines Agency (EMA) considerate it as an alternative than the current lower ...
FDA and EMA Accept Applications for Higher Dose Regimen of Nusinersen in SMA
We are pleased to announce that our applications for the higher dose regimen of nusinersen are now under review in the US and Europe,” said Stephanie Fradette, Pharm.D., Head of the Neuromuscular ...
Daily6h
Rare Disease Patient Registry, Treatment Clinic soon in Kerala
Thiruvananthapuram: The Kerala government is planning to launch a registry for rare diseases and set up a treatment clinic in ...